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Gardner Syndrome / FAP
Health & Wellness

Introduction
Gardner's syndrome is a disease that affects many parts of the body. The primary problems with Gardner's syndrome are in the digestive system Patients will have hundreds, sometimes thousands, of polyps throughout the large intestine ... more
Support ... Caring and Sharing
Yahoo! Groups - FAP/Gardner syndrome
Yahoo! Groups - Kids with Gardner syndrome
Yahoo! Groups - Desmoid tumour survivors
The Desmoid Tumor Online Support Group
Association SOS Desmoide (French/English)
HCCA Hereditary Colon Cancer Association
Gardner's syndrome and genetic counseling
FAP.org - FAP Support Group
Surgery and More
It was late June of 1988. I was 37 years old. Something didn't feel exactly right ... a little bit of pain, but nothing really that alarming. I told myself that I would go to the doctor if things were not any better after the July 4th weekend. And then ... more
Food
Food. I really love the food I use. After I lost my colon, I had a heck of a time figuring out what to eat. Some foods caused too much gas. Some foods ... more
Technical Web Links

Huntsman Cancer Institute ... at the University of Utah

Familial Gastrointestinal Cancer Registry ... Mount Sinai Hospital, Toronto

McGill University Department of Human Genetics ... genetics and testing

The Collaborative Group of the Americas on Inherited Colorectal Cancer ... registries and more

Familial Polyposis Survivor Website ... tech stuff from another patient

The Polyposis Registry at St Mark's ... learn the basics

OMIM ENTRY 175100 ... a lot of reading and a gazillion links

MYH Associated Polyposis (MYH) ... one of the causes of FAP

Colon ... more related data - more links - Crohns, Ulcerative Colits, etc.

Cancer Research UK ... and the work goes on in the U.K.

GASTROINTESTINAL DISEASES ... esophagus, stomach, intestines

Oncolink ... oncology: information, news and more

The Sidney Kimmel Cancer Center at Johns Hopkins ... research and news

Beth Israel Deaconess Medical Center - General & GI Surgery ... the Whipple procedure


More Surfing ... Digestive Diseases and Miscellaneous

National Institute of Diabetes and Digestive and Kidney Diseases ... the link title says it all !!!

Internet sites of Medical Interest ... long list ... as if you haven't surfed enough by now

Medicimo ... all kinds of medical stuff

Information from this site is not a substitute for medical care ... Please see your doctor for professional care.
Disclaimer: The above information was compiled by a patient ... not a doctor ... the information is subject to correction and may be inaccurate ... Corrections and suggestions are welcome.

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